Updates

We survived our first camping trip over memorial day weekend- Mallie loves being outside and it was a beautiful weather! We are still struggling with eating, everyday is different - can be so frustrating.  Friday Mallie went in for a weight check and only was 9 pounds 14 ounces.  Still not quite to ten yet, I was so disapointed because they are talking feeding tube.  Sounds sooo scary and I don't want her to have to do it.  GR dr started her on prevacid once a day to see if that helps at all with any tummy issues she could be having.  Its kinda a last ditch effort to avoid the G tube.  She has been cutting so many teeth - she now has 6 of them poking thru!!!  I do think that had something to do with the last week and half eating difficulties.  So now that she is on prevacid, we dropped back to 24 cal formula and the teeth have emerged - I am hoping to see an improvement with quantity of formula.  We have had some rough days that last week or so.......Since my last post - Surgery has been put off until July27th now because of scheduling conflicts for the malrotation doctor.  I was not super excited about waiting that long now for everything!  Even the ears....my gosh she may not hear good until she is a year old.  Just feels like we are so far behind and keep slipping.  On another good note - today has been a good eating day!!!!  She even ate some oatmeal and a cracker and her volume is up from what it has been the last 2 weeks!!!  I am hopeful she continues to increase her feeds so we can avoid the tube.  Hope everyone had a great holiday weekend - till next time - Steph