A story about our Amazing little girl who is the strongest, bravest & most beautiful person I have ever known. She has been thru alot and I want to keep track of every detail. Keeping friends and family in the loop along the way. Mommy and Daddy Love you Mallie!
Mallie Bean
Thursday, September 9, 2010
Afternoon Updates
Mallie's surgeon came in earlier this morning and thought she looked good - belly was small - was not producing much from the NG tube. So he agreed to take her off suction to gravity. Also he talked a bit about her heart rate and temp with me. He was not sure if her syndrome had any plays in this at all - since she does tend to run a bit lower on the norm. Either way the Cardiologist was going to take a look at her EKG. The EKG took like 5 minutes and was over. Grandma Tana and Great Aunt Kathy came by for a visit - Mallie was up and happy most all of the time. Except when they come in to take her assessments. She hates them people!!!! Today we had a student learning - which was extra special!! She took extra long......the cardiologist said that everything looked good with her heart - NORMAL:) her temp is still slacking back down to the lower end again and as she sleeps now I am watching the monitor drop into the 60's. Its a little freaky - but how normal is it - its not like we check her heart rate at home 24/7. I have the heat in her room cranked and extra blankets on her. So hopefully whatever is making her cold will knock it off. There is a possiblity we may be able to start feeding tomorrow - we just have to wait and see. So right now while she is napping - its nap time for me too. Be back later........
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