School...say what?

Well miss Mallie is signed up for Kindergarten starting in the fall, where did that time go? We were really not interested in Kindergarten, she turns 5 in September. Preschool was what I was planning along with Victory School as the place. Well so much for that idea - but I believe everything fell into place or at least will fall into place. I am very much at ease with the whole Idea of Kindergarten next year after meeting with the school. She may have to go twice but that is ok, she would have done Pre then K if I had my choice so K would have been the following year anyway. Everything is as it should be :) We will meet again with all of her therapists, a teacher and principal do work out her IEP for next fall. Mallie made herself right at home when we visited the school, no doubt she will LOVE IT! I am very excited and a little sad at the same time. Mostly excited, but can't believe almost 5 years has flown past already. I don't like that at all! Had an audiology appt last week and everything looks good still, no drastic changes - that is what we like to hear! We will keep closer tabs on the CI mapping so that we can avoid or catch any issues sooner rather than later. Mallie's feet have been weighing on my mind too, she wears her AFO's 95% of the time and they do help her walk. I have just been noticing her big toes starting to curve inward and without the braces on the Pronation is very strong, more on left side than right. I feel like all the Drs we see are like oh just keep doing what your doing, blah blah blah. After much research and discussion with our PT, we both agree a wedge to balance out that pronation is what needs to happen. I was just at Mary Free Bed last week getting her casted again for her next set of braces. I asked him if we could do somthing inside because she is still able to pronate inside the brace a bit. He had some random reason why we should not add a wedge. I got to thinking about it all weekend and I know we need to do something. I am trying to avoid deformity, pain or surgery later down the road. Not one of her Drs that should be responsible for this care to entertain my thoughts. Its very frustrating!! So we are sort of taking into our own hands. We put some foam in her current braces to help bring that inside of her foot where it belongs. Right away it seemed to make a difference in her walk. The pronation is her ankles rotating inward and it is very severe. Looks like it would hurt her, and if not corrected it certainly will later on. More to come on this for sure. Other than that things are good here, she keeps surprising us with phrases and the things she will remember and say. We certainly love that little peanut! Night for now, Happy May Day!