Post Op

Good Afternoon All -

Well yesterday did not go as intended or planned or well you know.  It never does, there seems to be a pattern here....so her surgery took about 4 hours as you would have read in the previous post.  Steve and I did not get to see her until 9 or so.  Not even sure when but it was late.  Last time they had us see her in recovery so that is what I expected.  But they took her straight to PICU.  So we came up and neither one of us were prepared for what we saw.  She still had her breathing tube in and wires and tubes everywhere.  It was a horrible thing to see our baby girl like that.  Steve left and went downstairs and I just lost it.  The nurse said they were going to try and take the tube out as soon as they can.  Had to draw blood first to check her Co2 levels to make sure she did not need the tube.  Her Central line in her chest had twisted and of course quit working so they had to re thred that so they don't have to keep poking her and she can continue to get her nutrition thru the IV.  I was able to stay with her and Steve went home for the night.  The chair bed thing they have in here is like sleeping on box springs.  Needless to say, sleep was not my friend last night.  They did get the breathing tube out at about 11:30pm.  She was fne without it.  So far today she is miserable.  She can barely cry but tries.  No smiles from her at all which is so not the normal Mallie.  She is in alot of pain, taking morphine every two hours and her heart rate is still thru the roof.  The ordered an echo of her heart which they just got done doing.  We won't know the results till later today.  Her heart rate has been a little bit of a concern.  Her poor little body is having a hard time with this surgery - it is way more in depth than the last with a lot more swelling and inflamation.  Nothing I can do can make her feel better.  We were able to get the morphine upped a bit, but have to keep an eye on her breathing because too much can effect that.  Also her abdoman is swollen pretty good and that will effect her breathing as well.  That is really all to report for today so far.  Oh and supposedly we will be moving to a regular room sometime today, but I would much rather her stay in here under a more watchful eye.  Will see though.  Will write more later.  Steph