Thursday Update

Hi to all -

Mallie is doing great!  Yesterday we had some issues with pain management but we got it under control now :)  When I came back from my genetic appt they had her all dressed up in a little sailor outfit and pigtails :)  She was so cute!!  Annie and Sam came down to hang with me since Steve went back to work for the day.  They got to see her while she was awake :)  We went to lunch and shared some laughs - Thanks girls I really needed that!!!  Then Mallie got moved to a regular room which is good but the care is not what we are used to.  There is only 3 nurses to the entire floor where in ICU she had her own nurse.  So its a good thing but not as comforting.  My sister Dawn came over to hang for the night and thursday - and thank God.  She has been helping me with all the medical stuff and getting things moving faster....  Love you sis - you are amazing!!!  Mallie had her last dose of Morphine at 11am then just tylenol every 4 hours after.  Her heart rate was elevated most of the day even resting at 170.  The could not figure out why???? mmmmm the nurse she had tues night said its an idication of pain, HELLO.....basically I had to make the call on the morphine or not and how was I supposed to know.  So we got her some morphine and she was soooo much better.  A surgeon P/A came in last night for a call so we got to talk to him.  Because her tube was not really getting much out of her tummy (a good thing)  He said lets - take it off suction and see how she does for 4 hours then if she did ok, they would clamp it.  Hopefully by the morning we can take that nasty thing out of her nose.  SHE HATES IT.  Tries to pull it out.  THe surgeon team should be here around 10 am this morning still waiting to see them for the protocol.  She should be able to start eating this morning, yay!  We will start with pedialite to see how she tolerates it.  Also she did pass some gas last night, a great sign!! Then this morning she had a dirty diaper - which is also a great thing!  Her intestines are not sleeping anymore..... She has been pretty miserable most of the morning - and who would'nt!  The poor girl has tubes and cords everywhere and has been picked, prodded, cut open, you name it.  But she did manage to start smiling and laughing for moment this morning.  So all in all she is doing great considering.  I will try to update a little later today with progress....Thanks everyone - we love all of you for helping us get thru this obstacle!! Love Steph!!