Mallie Bean
Thursday, September 16, 2010
more tests
I am emotionally exhausted right now - been awake since 5 and think I went to sleep around midnight. Woke up at every hour I am sure. Wanted to give a quick update on what the new plan is today. Mallie seems to be in better spirits this morning - but she always is. She still looks like she feels horible. The bloodwork this morning revealed WBC to be a touch lower as well as her platelets. So that is good. She is still on IV fluids and eating. She just took an almost 3 ounce bottle - which is crazy - but I fed her while she was sleeping too - so who knows. All the doctors here are concerned about her eating and sugar so a G tube is being tossed around on a regular basis. I am prepared for it I guess - if its going to help her. I only ask that we try a few thing first - and that is she needs to be checked for delayed gastric emptying and also we need to see if a appetite stimulant will work. So at 1:15 we are going in for another upper GI to see about that emptying time.......not looking forward to that - she has to drink barium and I am really not seeing that happen. Then later today the neure pedes team will be here to go over future plans. no results on the blood cultures until 5 pm - praying to god nothing shows up. Then we have another whole issue to deal with. One of the anitbiotics she is getting makes her all itchy - which they warned me about. Quote "some kids have a reaction to this but its not serious" . Oh yeah so she had the reaction, Weird? Anyhoo - its nap time for me right now - will update later when I know anything new.
Subscribe to:
Post Comments (Atom)
Good to hear that she was able to take the bottle and that the test results have improved. Hopefully this means that she has turned the corner and everything else will get better. She is definitely a tough little peanut. You have a lot of prayers coming your way from PA.
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteI was down in GR with Steff when the doctor who has seen RSS children came in and she was very patient and answered a lot of our questions. She seems to know quite a bit about Russell Silver Syndrome. So was a big plus for Steff and Mallie and a great learning experience for me as well. Mallie was pretty happy when I was there - the only time she cried was when they had her drink the barium. Other than that she was smiley, waving and we even played a little patty cake. SHE IS JUST THE MOST HAPPY LITTLE LADY YOU EVERY DID SEE - unless she is being poked and prodded by nurses, doctors, etc. Now with the answers we have gotten from the new doctor hopefully they will come up with a plan that will help our little "tootie" eat better and put on some weight. Hopefully by Monday (if all goes well) she may be able to come home. THAT WOULD BE TOTALLY AWESOME!!!!!!!!!!!!!! By then it will be almost 22 days she has been there - way to long for our Little Mallie Bean and also way to long for Steff. THEY BOTH NEED TO COME HOME - but this time I think they are being a little more cautious than before due to the blood sugar thing. All we can do is keep saying prayers and hope ALL OF OUR PRAYERS OUR ANSWERED. Thanks to all who have been praying for her speedy recovery and to all the friends who keep going down to see both Steff and Mallie - it means so much to have friends that are so caring. Love Grandma, Tana
ReplyDelete