Sugar Update

Ok so through the night Mallie is consistently low (in the 60's) right before her feeding.  She will only eat about 2 ounces each time which in turn is also difficult to bring it up.  She went 5 hours total thru th night and her sugar was at 48 or some low number.  So of course we are all freaking out and trying to figure out what to do with her now.  Why is it low and how can we get it up.  72 is the highest reading they have taken and that is after she eats.  there are several reasons for this to be happening.  First of all with her syndrome  - she is at a super high risk - so for to have it - its not a big surprise.  Now the facts are she has been hooked up to a rate of glucose the whole time we have been here for like 24 hours a day.  So that pretty much keeps the sugar regulated no matter what.  They did cut the IV in half the first day we started feeds - then completely took her off yesterday.  So one theory is she did not get weened enough for her body to adjust.  Another theory is that this is normal for her and we never knew that.  A third theory is she is not getting  enough calories for her metobolic needs.  The surgical team gave the ok for her to switch up to her 24 cal formula instead of the 20 cal she is currently getting.  Also we can start incorporating the solids that she was eating before too.  With those things her sugar should dramatically improve.  So based on yesterday and last nights readings - the decision was made by the surgical team to hook her up to a low dose of dextrose just to keep her stabalized today.  They are going to consult Endocrinology to come up and talk with us about things and go over the sugar issue.  So not sure about going home yet.  We are soo close but I know with her sugar issues I certianly don't feel comfortable taking her home yet.  I know they too won't send us home with this the way it is.  Hopefully will have some Better news later today....