The end is in sight

Good morning to all - Mallie still has a sugar issue but it may be coming around.  The problem with her sugar is a combination of things.  She has lost weight since being in here and so any reserve she had has been depleted.  Then with her not eating as much as she should - she is not getting enough calories to maintain.  yesterday she was pretty consistant with her sugar.  It would be in the high 50's to low 60's before her meal.  Then afterwards it would go up to the 70's mostly.  She was only eating an ounce and a half to two ounces at each feed.  We changed her back to 24 cal formula yesterday instead of the 20 - which seemed to help a bit but she still needs lots more for her to get back to keeping it regular.  Last night she finally took a 2.5 ounce bottle before bed plus she got some yogurt juice with her prevacid - so at 2am her sugar was 77 still :)  That made me feel comfortable that we did not feed her so we could see how she would do at home when she sleeps all night.  This morning before the 6am feed her sugar was 57. Which was low but not bad...they don't want it under 60 ever but she was super close.  So this morning surgery came in and the plan today is to up her calorie intake by maybe mixing her formula with pediasure - or allowing reg solid foods in between meals.  We are going to monitor her sugar before and after feeds today.  They have consulted the neurodevelopmental doctors to come here and evaluate her as well.  We had an appt with them a week or so ago but were in here so we missed it.  Then we will stay again tonite to see how the calories help her and today they are going to devise a home plan for us between the million doctors we see.  So hopefully tomorrow we will be coming home!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!  Yes, its not a typo - we should be home tomorrow sometime.  My fingers are doubly crossed - that everything keeps heading in a good direction.  I have tried having a pep talk with Mallie and told her to EAT so we can get out of here:)  She just smiles....uh huh.....I will be back on later with an update as to how the extra feeds go :)  Love to all!!!!